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Paddle for Friedreich Ataxia

Paddle for Friedreich Ataxia 

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Andrew Lawson
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Gary Suckling
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Mark Winnell
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Paul Kurema
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Peter Brearley
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Peter Evans
Peter Evans
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About Paddle for Friedreich Ataxia

We will be paddling from Cobram to Echuca (around 210kms) to raise much needed funds for research into Friedreich Ataxia - to arrest symptoms and eventually find a cure. I have two nieces with this fatal, neuro-muscular condition and this is what drives me to challenge myself and to raise awareness and funds. My paddling mates and and I have raised around $100,000 over the last 5 years and rely on the generosity of family and friends to support our efforts. 

This year we hope to raise $20,000. For information regarding Freidreich Ataxia please go to: https://fara.org.au/.

About FARA

Imagine being a kid or a teenager and being told you have a degenerative muscle disease which will lead to a loss of muscle co-ordination, fatigue, vision impairment, hearing loss, slurred speech and then a serious heart condition - this is Friedreich Ataxia. 1 in every 30,000 affected. 1 in 90 are carriers. 

The Friedreich Ataxia Research Association (fara) is a not for profit organisation that supports research into treatments and a cure for Friedreich Ataxia. fara does not receive State or Commonwealth Government support and relies largely on the family and friends of Friedreich Ataxia patients and generous businesses within Australia and New Zealand to fund its research programs.  

Money raised will help establish our first clinical gene therapy trials in Australia, which will help find new treatments and a cure for Friedreich Ataxia.
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http://www.fara.org.au/

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