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TEAM FUFA

TEAM FUFA 

Supporting FARA
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About TEAM FUFA

Our Son Jake now 21 years old was diagnosed with Friedreich Ataxia in Jan 2010 at the age of 13 years he went into his 1st Wheelchair within 6 months of diagnosis. FA which is a Rare Neuro-Degenerative condition currently has No Cure, it has many symptoms - Loss of Co-ordination & Mobility (most people with Ataxia look like they are drunk while trying to keep mobile & walking) Severe heart conditions, Scoliosis of the spine, clubbed feet & hands, Extreme Fatigue, Slurred speech, impaired vision & hearing, sensitivity to heat & cold temperatures, Diabetes & involuntary muscle movements. FA is one of those Rare Diseases & is not one of those conditions We all know about. It was the Most Heartbreaking moment in my/our Lives & as Jake's Mum, I was determined to Make a Difference to be able to Help those that are the Researchers who dedicate their Lives & time to Find that Cure. WAFA Support Crew which has been actively fundraising for FARA since 2011 has also become Team #FUFA because We Will Not Be Beaten. Jake is An Inspiration to Many that know & Love him & it is in his Honour & all those that suffer with FA that We continue to Fight Friedreich Ataxia. You can help too, by donating to my page. Any amount you can give makes a difference! You can also support me by encouraging others to get involved too. Please email the link to my page to your friends and family, or share it on social media. Thank you for your generosity and support -- it means a lot to me. Together we can help FARA create the world we want to see.

FARA

Imagine being a kid or a teenager and being told you have a degenerative muscle disease which will lead to a loss of muscle co-ordination, fatigue, vision impairment, hearing loss, slurred speech and then a serious heart condition - this is Friedreich Ataxia. 1 in every 30,000 affected. 1 in 90 are carriers. 

The Friedreich Ataxia Research Association (fara) is a not for profit organisation that supports research into treatments and a cure for Friedreich Ataxia. fara does not receive State or Commonwealth Government support and relies largely on the family and friends of Friedreich Ataxia patients and generous businesses within Australia and New Zealand to fund its research programs.  

Money raised will help establish our first clinical gene therapy trials in Australia, which will help find new treatments and a cure for Friedreich Ataxia.
Visit Our Website
http://www.fara.org.au/

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