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Laus’s Half Marathon March

Laus’s Half Marathon March  

Supporting FARA
$2,579
Raised of $1,500 goal
15
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About Laus’s Half Marathon March

Hi Everyone, I'm running a half marathon on March 11th and am hoping to raise funds for FARA. They provide funding for much needed research for Freichrick's Ataxia for which at present, there is no treatment or cure. I am lucky enough to know a gorgeous man who has Freichrick's Ataxia, who's day is like running a double marathon! He does it with grace, courage, and endless resilience ( he even keeps a little energy for a tad of flirting with the hot ladies!) I would be most grateful if you can get behind this great charity and donate what you can. Together we can make the future brighter for those diagnosed with Friedreich Ataxia in the future. Thank you for all your support, Lots of love, Laus xx .

FARA

Imagine being a kid or a teenager and being told you have a degenerative muscle disease which will lead to a loss of muscle co-ordination, fatigue, vision impairment, hearing loss, slurred speech and then a serious heart condition - this is Friedreich Ataxia. 1 in every 30,000 affected. 1 in 90 are carriers. 

The Friedreich Ataxia Research Association (fara) is a not for profit organisation that supports research into treatments and a cure for Friedreich Ataxia. fara does not receive State or Commonwealth Government support and relies largely on the family and friends of Friedreich Ataxia patients and generous businesses within Australia and New Zealand to fund its research programs.  

Money raised will help establish our first clinical gene therapy trials in Australia, which will help find new treatments and a cure for Friedreich Ataxia.
Visit Our Website
http://www.fara.org.au/

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