Proudly supporting FARA


Supporting FARA
Raised of $3,500 goal
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#FARATOKYO19 In 2017 with the Help of our amazing Friends and Family, Lorinda and I raised over $20,000 for an amazing cause by running the New York Marathon, Well we are back and fitter than ever!!! This Sunday we will be running the Tokyo Marathon and raising awareness & funds to go toward another amazing group called FARA. Being very special to our hearts and part of our life through Beautiful friends, Natalie and Mason Allamby. Their son Tristian lives with Friedreich Ataxia. Although there has been significant progress towards treatments, today there is no cure. But what is Friedreich Ataxia exactly? Well, FA is a debilitating, life shortening degenerative neuro-muscular disorder. FARA is a not for profit organisation that supports research into treatments and a cure for Friedreich Ataxia., if you would like to support you can get actively involved by donating to any of the following: You can be part of the determined efforts to find a cure for FA. This is how you can help. $20 will house one FA mouse breeding pairs for a week $50 will house two FA mouse breeding pairs for a week $100 will house five FA mouse breeding pairs for a week $250 will cover the weekly mouse maintenance costs for a pre-clinical study requiring 25 mice $300 will support a research assistant working in an FA laboratory for a day $1,500 will pay the salary of a gene therapy clinical trial research coordinator for one week $2,500 will pay for the recruitment and preliminary evaluations of a patient enrolled in an FA clinical trial $5,000 will provide the necessary laboratory supplies and reagents for FA gene therapy research for a month Lend us Some Muscle!! - If donating is not for you please contact Lorinda and I through Facebook for some “Lend us some Muscle” Tattoo's to wear on the 3rd March as we will be during the Tokyo Marathon in great Support of an Inspiring Boy Tristan and all those living with FA *100% of your donation goes to FARA and not to pay for Sake for Pete.


Imagine being a kid or a teenager and being told you have a degenerative muscle disease which will lead to a loss of muscle co-ordination, fatigue, vision impairment, hearing loss, slurred speech and then a serious heart condition - this is Friedreich Ataxia. 1 in every 30,000 affected. 1 in 90 are carriers. 

The Friedreich Ataxia Research Association (fara) is a not for profit organisation that supports research into treatments and a cure for Friedreich Ataxia. fara does not receive State or Commonwealth Government support and relies largely on the family and friends of Friedreich Ataxia patients and generous businesses within Australia and New Zealand to fund its research programs.  

Money raised will help establish our first clinical gene therapy trials in Australia, which will help find new treatments and a cure for Friedreich Ataxia.
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