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F.A.C.E - Find A Cure Events

F.A.C.E - Find A Cure Events 

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About F.A.C.E - Find A Cure Events

Lend Us Some Muscle is fara’s Annual fundraiser to raise awareness and funds to support people with Freidreich’s Ataxia (FA). Our daughter Charlotte was diagnosed with this progressive neuro disorder in July 2016. We are closer than ever to a treatment to slow the progression and then a cure! Your support will help us get to the end goal ... A CURE for FA.


Imagine being a kid or a teenager and being told you have a degenerative muscle disease which will lead to a loss of muscle co-ordination, fatigue, vision impairment, hearing loss, slurred speech and then a serious heart condition - this is Friedreich Ataxia. 1 in every 30,000 affected. 1 in 90 are carriers. 

The Friedreich Ataxia Research Association (fara) is a not for profit organisation that supports research into treatments and a cure for Friedreich Ataxia. fara does not receive State or Commonwealth Government support and relies largely on the family and friends of Friedreich Ataxia patients and generous businesses within Australia and New Zealand to fund its research programs.  

Money raised will help establish our first clinical gene therapy trials in Australia, which will help find new treatments and a cure for Friedreich Ataxia.
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