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Challenge

Challenge 

Supporting FARA
$14,328
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About Challenge

Challenge Shane, a son and our big brother Shane lived by the word, Challenge. The word Challenge was Shane's mantra and he Challenged himself everyday with his disease. Before his 10th birthday, Shane was diagnosed with Fredreich’s ataxia, a terminal illness that is an inherited disease that causes progressive damage to the nervous system. While FA initially showed itself as a bit of an awkward or shaky walk, it eventually led to Shane being wheelchair bound, having little muscle control and difficultly understanding his speech. Shane was initially told he would not live beyond 21 years. Shane passed away at the age of 42 years old in January 2017. Shane worked at Bathurst neighbourhood centre, was a motivational speaker and was always up for life Challenges. We are raising much needed funds for Fredreich's Ataxia Research Association (FARA). Currently there is no cure for this terminal disease and no Government funding is provided to this study. 1 in every 30,000 people are diagnosed with FA. FARA's work is really important, and we want to do what we can to help. But there is only so much we can do on our own. You can help too, by donating to Shane's'Challenge' page. Any amount you can give makes a difference! You can also support this cause by encouraging others to get involved too. Please email the link on my page to your friends and family, or share it on social media. Thank you for your generosity and support -- it means a lot to us. Together we can help FARA find a cure!

FARA

Imagine being a kid or a teenager and being told you have a degenerative muscle disease which will lead to a loss of muscle co-ordination, fatigue, vision impairment, hearing loss, slurred speech and then a serious heart condition - this is Friedreich Ataxia. 1 in every 30,000 affected. 1 in 90 are carriers. 

The Friedreich Ataxia Research Association (fara) is a not for profit organisation that supports research into treatments and a cure for Friedreich Ataxia. fara does not receive State or Commonwealth Government support and relies largely on the family and friends of Friedreich Ataxia patients and generous businesses within Australia and New Zealand to fund its research programs.  

Money raised will help establish our first clinical gene therapy trials in Australia, which will help find new treatments and a cure for Friedreich Ataxia.
Visit Our Website
http://www.fara.org.au/

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