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Ben 4 Fara 

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About Ben 4 Fara

Hi I’m Ben and I have Friedreich Ataxia. I’m 15 and my body is deteriorating faster than I want it to. I’m already in a wheelchair. My speech is slurring. I have cardiomyopathy and scoliosis. My body will keep deteriorating unless a cure or some kind of treatment is found soon For FA. This condition will effect my whole body if it continues to degenerate. My muscles. My eyes. My ears. Everything apart from my brain. I would like to drive a car. Get a job. Have a life that normal kids do. I want to finish school and to travel. Fara needs funds to help fund research for cure so if you can help us that would be fantastic. Thanks from Ben 💚 Thank you for your generosity and support -- it means a lot to me. Together we can help FARA create the world we want to see.


Imagine being a kid or a teenager and being told you have a degenerative muscle disease which will lead to a loss of muscle co-ordination, fatigue, vision impairment, hearing loss, slurred speech and then a serious heart condition - this is Friedreich Ataxia. 1 in every 30,000 affected. 1 in 90 are carriers. 

The Friedreich Ataxia Research Association (fara) is a not for profit organisation that supports research into treatments and a cure for Friedreich Ataxia. fara does not receive State or Commonwealth Government support and relies largely on the family and friends of Friedreich Ataxia patients and generous businesses within Australia and New Zealand to fund its research programs.  

Money raised will help establish our first clinical gene therapy trials in Australia, which will help find new treatments and a cure for Friedreich Ataxia.
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