Long days, arduous conditions and difficult terrain. Sound like fun?
On the 4th April I’m embarking on a 3 week journey that culminates in a 12 day trek to the North Pole, an adventure in every sense of the word.
From open water "leads" to huge pressure ridges, there are many obstacles on this expedition that will make reaching the North Pole all the more satisfying. The trek involves participating in all aspects of the expedition, including trekking on cross country skies dragging a 40kg sled for up to 10hrs a day, setting up camp, cooking, tracking our progress, etc.
If conditions are good, the route will take me across large pans of flat ice that present few obstacles. When conditions are less than ideal, I'll have to manoeuvre around open water "leads", over pressure ridges that can range from 1-5 meters in height, staying clear of Polar Bear attacks all while trying to keep warm in temperatures that can drop to -30°.
This pails in comparison to the pain EB sufferers, and their families, endure everyday.
Please donate to my North Pole Challenge - and share this page amongst your friends and family - so we can help find a cure for Tilly and all the other EB sufferers.
About EB Research Foundation
Epidermolysis Bullosa (EB) is known as ‘the worst disease you’ve never heard of’ and very few people have heard of it.
EB is a rare genetic disease where the skin blisters daily and tears like tissue paper at the slightest touch. It is likened to living with 3rd degree burns and as you can imagine, it is extremely painful.
EB means the protein or ‘glue’ that binds the skin layers together is missing. Friction blisters and tears are formed constantly, sufferers endure an enormous amount of pain.
They have open wounds that never heal, they are bathed in bleach, sometimes salt and suffer through a painful routine dressing changes where their blisters are lanced and drained.
There are 3 different main types of EB that effect the different layers of skin externally and internally, which can also result in an early death.
There are only around 1000 EB sufferers in Australia so it doesn’t get a lot of attention.
Our mission is to find a cure for Epidermolysis Bullosa (EB).