Blackmores Sydney Running Festival 2017
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My Story

Hello friends! I am taking part in Blackmores Sydney Running Festival 2017 to raise much needed funds for Scleroderma Australia. Scleroderma is a little known disease with no known cause and no cure. Scleroderma Australia is a non profit organisation run by volunteers to support those with Scleroderma, their family and friends. Inspired by my beautiful friend Vic and the recent efforts of Team Marcie at the City to Surf, I felt it was time to get off the couch and do my part. Here I borrow directly from Vic: "When I was little, I didn't think my Mum was any different. Turns out I was right. She was fun, crazy, cranky and downright amazing. But behind closed doors she was in a weird, scary, isolated world of pain. A pain no one understood because the disease itself wasn't fully understood yet. And really still isn't. My Mum was diagnosed with the WORST kind of Scleroderma possible. There is not one part of her body that isn't affected. Scleroderma is a terminal illness. No cure, only prolonged painful treatments for the rest of her life. Marcia has faced every treatment and procedure head on with courage and determination with every fibre of her being. This illness kills most people in the prime of their lives, but my mother is a living miracle. We are so lucky and fortunate to have her with us to this day. I want to honour her living memory by raising funds for those that will benefit from the research she has contributed to over the last 35 years of her life as a case study. Whilst courageously battling this debilitating disease Mum has raised three daughters, completed two Masters degrees, was a longstanding director of a not for profit organisation for many years that benefited at-risk underprivileged youths, received a Churchill Fellowship for her tireless contribution to this field and has just recently, thankfully become a grandmother to two beautiful little babies. So yes, my Mum is no different to any other Mum. Except she's my Mum. And she deserves so much more than this disease has given her." This is where you come in! You don't have to run 10km or even get off the couch to make a difference. You can help by simply donating to my page. Every little bit counts! Thank you all, and thank you to Vic for allowing me to share her story.

About my cause: Scleroderma Australia

The purpose of Scleroderma Australia is to:

promote scleroderma awareness on a National basis
disseminate information about scleroderma
fund and coordinate scleroderma research on a National basis
advocate for improved and ongoing support for scleroderma patients

About Blackmores Sydney Running Festival 2017

The 2017 Blackmores Sydney Running Festival is an iconic event with a spectacular course that includes a run over the Sydney Harbour Bridge and a finish at the Opera House. The festival will be held on September 17, 2017 and features a marathon, half marathon, bridge run and a family fun run - so there is something for everyone. 35,000 runners are expected to participate in 2017.

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